Don't Judge Me for My Good Days: Psoriatic-arthritis.com

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  (This was posted Feb 16, 2024 - but I thought it was such a great topic that I wanted to repost it.) Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Read the full article at psoriatic-arthritis.com
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Been There Before

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As a person who is practically on a first name basis with their rhuematologist, when people talk about medical procedures and such I can almost always say 'Yeah I've done that too: Did you get it with contrast?' Or something of the like. I only recently realised it's not the most comforting thing for someone to hear. Honestly when I say 'Oh I'm nervous I have to have this done' or 'I just got this test', to hear 'Oh Don't worry I had it done and it's very easy it goes like this...' or 'I did too! Did they use..' puts me at ease.
But recently my friend had a health scare and I tried to be there for her. I know it's scary and she wouldn't stop talking about it and how afraid she is to go see the specialist. I thought it would be smart to say things like 'Better to know than be left in the dark' when she said she doesn't want to continue on. I would've thought everyone was the same way. Or when she said 'I got an ultrasound' I said 'Really? Did it go alright? I get those a lot.' Turns out it made her really mad when I said those things. I didn't understand until last night thinking about it. I guess sometimes when these things happen, you either want to feel normal and know other people go through the same thing or you want extra attention (I don't mean in a bad way, I mean the 'somethings wrong and I need support' way) and need to feel different. I forgot about when I was first diagnosed and even today. As much as I like being able to relate much more than feeling different, sometimes I just want to feel different because I am different.

I suppose being sick teaches you a lot about life.

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